Building Capacity for Patient-Centered Research to Prevent HPV-Related Cancers in Texas

The Building Capacity for Patient-Centered Research to Prevent HPV-Related Cancers in Texas Project imagines a future without HPV-Related Cancer, Built Together.

Human papillomavirus (HPV) is behind six types of cancer, and nearly all of them are preventable. Vaccination and screening already give patients the tools. What's missing is a clear, patient-informed roadmap for putting those tools to work across Texas. That's what the project is here to build.

Project Overview:

Human papillomavirus (HPV) causes six types of cancer that are largely preventable through HPV vaccination and cervical cancer screening.  Since 2017, the Texas HPV Coalition has been dedicated to the prevention of HPV-related cancers and has identified the need to build capacity in patient-centered comparative clinical effectiveness research (CER) to propel the state forward to its HPV-related cancer elimination goals. 

The goal of this project is to build capacity in patient-centered CER for HPV-related cancer prevention in Texas. 

The project collaborates with multiple organizations across Texas and is housed at the Kate Marmion School of Public Health.

Objectives: Our goal will be achieved through the following objectives:

1. Build capacity for patient-centered CER on HPV-related cancer prevention in Texas.
2. Identify the patient-centered outcomes and the strengths/weaknesses of clinical interventions for HPV-related cancer prevention in Texas for future patient-centered CER studies in Texas.
3. Determine the patient-centered CER priorities for the prevention of HPV-related cancers in Texas.
4. Formalize an HPV-related cancer prevention patient-centered CER research agenda for Texas.

Activities: Our primary activities to achieve our objectives include:

1. Engage the Community Advisory Group to build patient-centered CER capacity and guide the patient-centered CER research agenda for HPV-related cancer prevention in Texas.
2. Participate in and disseminate trainings/resources to build Texas HPV Coalition capacity for patient-centered CER in HPV-related cancer prevention.
3. Conduct a literature synthesis of clinical interventions for HPV-related cancer prevention.
4. Review HPV-related cancer prevention data and conduct a Delphi survey among stakeholders.
5. Conduct virtual focus groups to prioritize the patient-centered CER research agenda and disseminate the research agenda to the broader community.
6. Produce the patient-centered CER HPV-related cancer prevention research agenda for Texas.

Acknowledgement of funding

This program was funded through a Patient-Centered Outcomes Research Institute (PCORI) Eugene Washington PCORI Engagement Award (EACB-44971).

The views, statements, and opinions presented on this website are solely the responsibility of the author(s) and do not necessarily represent the views of the Patient-Centered Outcomes Research Institute (PCORI), its Board of Governors or Methodology Committee.